Painful color spectrum

Spoonies are people with chronic illness. What is a chronic illness? It's a persistent condition; simplified it means getting sick and never being able to get better. The term/label was coined after the Spoon Theory by Christine Miserandino to help explain what chronic illness is like to people who don't have it. Not everyone with …

What being a disabled millennial like

I guess it's been exactly a year since I started blogging. I started writing with the intention of gaining some perspective in my life and it totally worked. I'm right and everyone is terrible. At the start of the year I had my trusty neuromuscular disease which makes it impossible for me to physically care …

Unrest, a visual handbook for the loved ones of disabled people

The award-winning documentary Unrest by Jennifer Brea was released on Netflix this week, introducing chronic illness to the larger public. Brea is described as a modern-day Odysseus as the movie documents very real and metaphorical journey to discover who and what she is as a disabled woman in her 20s with an invisible disability. The …