Painful color spectrum

Spoonies are people with chronic illness. What is a chronic illness? It's a persistent condition; simplified it means getting sick and never being able to get better. The term/label was coined after the Spoon Theory by Christine Miserandino to help explain what chronic illness is like to people who don't have it. Not everyone with … Continue reading Painful color spectrum

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What being a disabled millennial like

I guess it's been exactly a year since I started blogging. I started writing with the intention of gaining some perspective in my life and it totally worked. I'm right and everyone is terrible. At the start of the year I had my trusty neuromuscular disease which makes it impossible for me to physically care … Continue reading What being a disabled millennial like

Unrest, a visual handbook for the loved ones of disabled people

The award-winning documentary Unrest by Jennifer Brea was released on Netflix this week, introducing chronic illness to the larger public. Brea is described as a modern-day Odysseus as the movie documents very real and metaphorical journey to discover who and what she is as a disabled woman in her 20s with an invisible disability. The … Continue reading Unrest, a visual handbook for the loved ones of disabled people

What I say and what I do are very different things

I have this incredible shame of not being who people want me to be. Not just the ones who want me dead or want me cured, I'm ashamed of not living up to even my own words. I talk a lot about disability on social media and people get the impression of me that. I … Continue reading What I say and what I do are very different things

What is cripple punk? #cpunk

I saw Kevin or Chad or whatever; he's an aryan dude who was captain of the basketball team but then he got drunk or fell off something he was climbing or some other dumb shit and now was paralyzed and he was constantly telling everyone how he was proof that you should treat disabled kids like they're real people. I mean, yeah, duh, he was one of them who accidentally became one of us so of course he was like them.