Painful color spectrum

Spoonies are people with chronic illness. What is a chronic illness? It's a persistent condition; simplified it means getting sick and never being able to get better. The term/label was coined after the Spoon Theory by Christine Miserandino to help explain what chronic illness is like to people who don't have it. Not everyone with … Continue reading Painful color spectrum

Advertisements

Unrest, a visual handbook for the loved ones of disabled people

The award-winning documentary Unrest by Jennifer Brea was released on Netflix this week, introducing chronic illness to the larger public. Brea is described as a modern-day Odysseus as the movie documents very real and metaphorical journey to discover who and what she is as a disabled woman in her 20s with an invisible disability. The … Continue reading Unrest, a visual handbook for the loved ones of disabled people

I love my disability

My public persona IRL is incredibly friendly and funny and "eccentric" and I know I obviously developed these characteristics to a cartoonish level because of my disability. You have to survive off of the benevolence of others. But one of the things I do that people refer to as "eccentric" or me just being me, … Continue reading I love my disability