Spoonies are people with chronic illness. What is a chronic illness? It's a persistent condition; simplified it means getting sick and never being able to get better. The term/label was coined after the Spoon Theory by Christine Miserandino to help explain what chronic illness is like to people who don't have it. Not everyone with … Continue reading Painful color spectrum
My public persona IRL is incredibly friendly and funny and "eccentric" and I know I obviously developed these characteristics to a cartoonish level because of my disability. You have to survive off of the benevolence of others. But one of the things I do that people refer to as "eccentric" or me just being me, … Continue reading I love my disability
Everyone wants us to die, it's unanimous. They have the capability and the inclination. So why aren't we dead yet? We don't have the power that they do. We don't have autonomy. Our humanity is still disputed. We aren't alive because we fought hard enough, we're alive because they need us.